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Dealing with Parkinson's Research

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Main navigation

  • Home
  • About
    • About Us
    • DRIG Business
    • Glossary
  • News
  • Events
    • Upcoming Events
    • Past Events
    • Lab Visit Reports
  • Patients
    • My Parkinson's
    • Parky Poetry
  • Research
    • Research In Depth
    • Trials
  • Contact

My Parkinson's

My Parkinson's is where our ordinary members can publish their own personal stories relating to their own experiences with Parkinson's and how it affects their lives.

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Jo Goodburn asks Brendan Hawdon about his Participation in the Activate Study Trial
Brendan Hawdon
Monday, February 12, 2024

How did you get involved in the trial?

Having previously participated in the ROPAD and Front line genetic trials, and so discovered that I have a variant of the GBA1 mutation I was keen to be involved in any trials aimed specifically at my genetic mutation. My consultant Esther Sammler was aware of this.  She had already started work on a LRRK2 genetic mutation trial drug here in Dundee and is now recruiting participants for the Acitivate Study trial, for which I am very grateful!

What is involved in preparing for participation?

More…
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New "Special Interest Group on Parkinson's & Technology" (SIGP@T) created
Werner Remmele
Friday, August 21, 2020

Werner, DRIG's former secretary and founding member, is still working very hard for PwPs and has set up this new group for those with an interest and a special skill in technologies which can help PwPs, read more about it below and on our News page.  This will also be the subject of this year's planned DRIG autumn "virtual conference" event.

'You should take your medicine now.'

More…
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Fife Local Group has a Lockdown Poet
Mark Coxe
Tuesday, August 18, 2020

Mark has been doing a fantastic job of taking a poetical view of the challenges posed by the Covid Lockdown and sharing these on their WhatsApp Group.  Now he has turned his attentions to the DRIG, thank you Mark!

 

What DRIG stands for

More…
Janet Kerr
THE BRIEF, THE BIKE AND ME!
Janet Kerr
Tuesday, July 7, 2020

RaidLocal was the new name of the cycling challenge set by The Cure Parkinson’s Trust.

More…
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Impressions from my first “DRIG Workshop” – Exercise and Parkinson’s, Dundee, 8th Feb 2020
Brendan Hawdon, St Andrews & Brussels
Friday, May 22, 2020

I am a 59-year old Irishman married to a wonderful person, Joanna. I was diagnosed with Parkinson’s about three years ago in Belgium, and intend to retire this autumn, a bit earlier than anticipated, to Fife, where we  already have a house and two of our three children go to school.

More…

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0808 800 0303

The Parkinson’s UK helpline is a free and confidential service providing support to anyone affected by Parkinson’s.

hello@parkinsons.org.uk
Emails answered within 5 working days.

Text relay: 18001 0808 800 0303
Textphone number for textphone users only.

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Parkinson's UK

Parkinson's UK
215 Vauxhall Bridge Road
London
SW1V 1EJ

Tel: 020 7931 8080

Parkinson's UK is the operating name of the Parkinson's Disease Society of the United Kingdom. 

A registered charity in England and Wales (258197) and in Scotland (SC037554).

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